Rett UK

Who is Rett UK?

Rett UK has been providing support services for over 30 years, bringing valuable insight to the Rett syndrome journey from toddler through to adulthood.

How can Rett UK help?

Rett UK’s goal is to give families the support, information and practical advice needed to help deal with the challenges Rett syndrome presents. They are available to support if you’ve recently received a diagnosis all the way through to your child’s transition into adulthood, and their Family Support Team is just on the other end of the phone.

They can liaise with people involved in providing services in health, education, respite or residential services. Their local support groups can allow parents to meet other parents and share tips, strategies and support.